Monday, April 21, 2008

Lessons From My Lemons and other News

I wanted to let you all know that I have embarked upon another writing project at: www.lessonsfrommylemons.blogspot.com. I won't spend much space telling you about it except to say that Super Mom will remain about the Minis whereas the new blog will be from my perspective and more about things that I experience.

In other news, I learned that Blogarithm was pretty much sucking not doing its job and folks were getting update emails for at least a day after I updated. Sooo, I have found another service that will do essentially the same thing. It is called Feedburner and I have placed on both blogs a link to get the updates delivered directly to your inbox.

Happy Reading!

So much has happened

AAAAHHHHH!

Where has the time gone? I turned around and it has been almost a month since I posted. So let's see what has happened in the last 4 weeks (in no particular order):
  • John went from 2 teeth to 6 teeth in about 2 weeks;
  • Dave and I went to the DAN! Conference and learned an awful lot of amazing info;
  • James has almost completely stopped napping (let's pause for a moment of silence...);

I know, you're wondering what about Kayla??? What did she do this past month? Well, really there isn't much she isn't doing. She is our amazing blessing. She is so much more mature than her age. (Is that right? Dad, help me out with the grammar here.) She loves school and her teachers can't say enough about how wonderful she is. She wants very badly to read like her big brother and tries hard every day to read just a little more. She loves playing with John. She is so good at watching out for him and just the sight of her makes him light up like the Fourth of July fireworks.

In other news, John's first two teeth (on the bottom) came quite awhile ago. Like the twins they came pretty close together. The twins also got the rest of their teeth in pairs. This was great because they would teethe really bad for a few days and then have two more teeth. Well, John started getting really cranky and was drooling like a leaky faucet. Then they started coming. Now he has 4 teeth on the bottom and 2 on top and once again he is as happy as can be again!

A couple of weeks ago Dave and I spent 2 days straight up to our eyeballs in seminars and workshops about biomedical intervention designed to treat Autism. WOW is all I can say. We were completely unprepared for how much info it would be. But it really made an impression on both of us. We not only learned about the typical things you might expect (GFCF diets, vitamins and supplements) but also about toxins and other things that may have contaminated our possibly already compromised kiddos. We also learned about working to prevent harm to our next kiddos. Sooooo, we came home and threw out all of our Teflon coated pans, food storage containers, plastic plates and cups. In their place we purchased new Rubbermaid containers, started using our cast iron pots and pans more often and invested in Corelle plates and cups for the kiddos.

Yes, I know some of you don't completely understand the sadness I am feeling about James's abandonment of naps but I coveted that time when the twins (and sometimes John, too) would nap and the house would be quiet and the time would be mine. I am not trying to sound selfish but I REALLY need that time. It is time when I can make important phone calls without major interruptions or respond to an important email or (heaven-forbid) take a nap myself. So now we are trying something a bit different. Some days we go out and do something fun after James gets off the bus (go to the playground, go see Mr. RAY) then the next day I let the twins know that today will be a resting day and Voila! Kayla and James both take a nap! Granted Kayla would nap everyday for at least 2 hours if I would let her but I think that this is better for everybody (at least for now).

Wednesday, April 2, 2008

Autism Awareness and Zucchini

more on zucchini in a bit...

Today is World Autism Awareness Day. I am so pleased to see all the attention that is being paid to this worthy cause today (and almost everyday, it seems). Though there is still the part of me that is sad that we have to have a day like this at all. I must say that for all the difficulties we have on a daily basis I am blessed and grateful that we have a very mild case. Yes, I do mean we. Though this may seem to be James's affliction we are all affected. We have all had to adjust our way of life to adjust for him and I honestly wouldn't have it any other way.

People often say 'I give you so much credit' or 'I don't know how you do it'. The answer is simple: Jesus. It is only through His gift of grace and forgiveness that I am where I am today. And I truly believe that without this saving grace I could not be the Wife-Parent-Daughter-Sister-Friend that I am today. I also believe that it is through His amazing plan that I have been connected to and been touched by so many who have taught me (and subsequently us) all the things I didn't know that I would need to know.

And now for the zucchini... John tried zucchini for the first time tonight and the outcome was not favorable! This is the first time in 3 months that he has actually rejected food. He seemed happier to not eat than to eat pulverized zucchini mixed with applesauce, rice cereal and formula. (You know you want some!!!) Ahhh, the joys of parenthood... more to come.

Saturday, March 29, 2008

How Fast the Time Goes

So it seems that John is already seven months old. Um,... how did that happen? The twins are going to be 4? Is Dave really going to be 33? YIKES!!!

Well John is officially sitting up on his own. On Thursday (3/27) we spent a lot of time playing on the floor and then that evening he did! He spent about 15 minutes sitting up nice and tall before beginning to teeter from exhaustion. Man did he sleep well that night!

It is spring break right now and the Gaters are a little off kilter right now. Hopefully life will even out a bit once school is back in session.

Monday, March 17, 2008

Saying Goodbye

My Grandpa had a stroke Monday February 25. He was found at 3 pm on the floor with obvious impairments including speech loss and left side immobility. He was admitted to Georgetown Hospital where, after a battery of tests, it was confirmed that he had indeed had a sizable stroke on the right side. The doctors were hopeful because he was gaining small bits of usage on his left side (he could squeeze his hand and raise his left foot). The doctors were thinking that he would be moving to a rehab facility that Friday February 29 (stroke patients are typically moved to rehab on day 5). Unfortunately he failed all swallow tests that they gave him which meant that he had to remain tube fed. When they tried to sit him up for Physical Therapy in the hospital his heart rate spiked up to 160-170. The doctors were very concerned and wouldn't move him until they knew that he would be more stable. The big, big concern was that with stroke victims the sooner the rehab can begin the better their chances are for recovery. Thursday morning, March 6, my aunt reported that Grandpa was unable to squeeze her hand and when she asked him if he knew who she was his eyes rolled back in his head as if he were going unconscious. My aunt also reminded everyone that he had an advanced directive to not keep him alive on life support. So the prayerful decision that needed to be made was when is it time to take Grandpa home? Have we tried enough options to help him recover? How hard would Grandpa want us to try before saying we are done? I went on Friday March 7 to see my grandpa (along with my mom and my sisters and stepfather). We spent 3 days visiting and making wonderful memories with Grandpa.
Tuesday morning, March 11, Grandpa was moved to Hospice Care. After a long weekend of discussions that was the decision that everyone felt would honor Grandpa's wishes. Beginning Sunday evening they moved a bed into his room (at the hospital) so that someone could be at his side all the time. Tuesday night my uncle sat by Grandpa's side during his first night in the Hospice. At some point in the wee hours of the night the nurses let my uncle know that they thought the end was very close. And at about 5 am on March 12 Grandpa passed away. We all had a wonderful time with him those last few days. He made lots of jokes - even in his very limited state. He called names and made jokes and was at times the same old 'Granpaw' we knew and loved. We sang songs and shared stories and had bittersweet goodbyes. My mom and her brother and sister decided to have a small memorial for him at his home in Georgetown on Sunday morning, March 16.

I wanted to say thank you to everyone who sent their love, prayers and condolences. As sad as our loss is, the time with family this past weekend was refreshing and was a great reminder of the power and strength of a loving family. While my grandfather will be missed by so many his legacy will live on for generations. I learned a lot about my Grandpa these past few weeks that is (in my opinion) pretty amazing. My mom and her sister and brother wrote his obituary and I was in awe of some of things that he accomplished in his 80 years on this planet.

Thanks again and hopefully the Gaters will be back to "normal" pretty soon. We are looking forward to celebrating Easter with our church and family this weekend. As I think of my Grandpa's last days and the suffering that he likely endured I am reminded of the Great Suffering that Jesus took upon Himself for our sake and am humbled. May you be reminded of the new life we are afforded in Christ as you prepare for this weekend.

(If you are interested I am going to try to post his obituary as a comment to this post.)

Friday, February 29, 2008

Happy Leap Day, Happy 6 Months, Happy Magic Nuudles

Just a quick note. Today is Leap Day. Is that what they call it? I know that this is a Leap Year but what is the official name for February 29th?... According to Wikipedia I am right! I actually have a friend whose birthday is today... Happy Birthday Jane N!!! What are you now? Like 10!

Today is also John's 6 month marker... WOW that has gone by fast. So let's see what does he do??? He has had 2 teeth for about a month and a half, he can pick up just about anything and stick it in his mouth, he LOVES his Exersaucer and I think I forgot to mention that he started rolling over last week. (It's not like I haven't had about a hundred other things happening too.) He is also eating like crazy. He has been eating solids for 2 months and LOVES his bananas. And through it all he is always laughing and smiling. I will let you all know what his stats are after his doctors appt next week. So stay tuned...


Magic Nuudles, what are those you ask? And didn't you spell it wrong? NO! They are this really cool product that look kind of like packing peanuts but are biodegradable and stick together when they get a little wet. Well Kayla and I had some fun creating with them today and this is her final creation:



Wednesday, February 27, 2008

Transitions Part 2

For all of you who were wondering how James has faired after a week of the "new plan" I thought that I would send out a followup post. Tuesday and Wednesday were extremely difficult. I don't think that we could have ever been prepared for the struggle that James had. Yes, he had many transition "inspired" meltdowns in the past but those are almost completely gone and when he does have difficulty with a transition or change now he can usually navigate through it with much more ease. I reread my post about Tuesday and I don't think that I was able to capture the extreme level of difficulty that he had and I am still not sure that I could. The frustration and meltdowns continued on Wednesday. His exhaustion worsened and on Thursday he was soooo exhausted that after returning from picking Kayla up from school he just lost it. He burst into tears and couldn't even stand up. I asked him if he wanted to eat lunch (our new normal time) and he just sobbed "No!" So now I am panicking because it is 11:15 and his bus comes some time between 11:50 and noon. What does he want? What do I need to do to make this easier? So I asked him if he wanted to take a nap or eat lunch and go to school. He screamed nap. So I reminded him that if he took a nap that he wouldn't go to school and he just pointed to his room. So I put him to bed without lunch and called the bus company and his school to let them know that he was not coming to school. He took a somewhat short nap but it definitely helped. The of course there was no school Friday because we got about 6 inches of snow!

So Friday night Dave and I went into crisis recovery mode and decided on a new schedule. (I should also mention that Kayla was soooo much less than pleased with this new schedule. She didn't like the idea that she was napping by herself and I think that she was jealous that James was getting one-on-one time with me while she was at school and while he was at school she was having to nap.) Now James gets special Mommy Time in the morning while Kayla is at school. Then after we pick her up we have lunch and hang out until the bus comes. Once he comes home we unpack and read a story and then everyone gets a nap - including John. Kayla loves this new nap time. She is always tired by then (3 pm). James doesn't always nap but he has to rest in his darkened quiet room. And Mommy gets a much needed respite from the crazies!

It means an adjustment on my part and rethinking the way that we used to do certain things. It is also going to require us (Dave and me) to think about when and how we participate in certain events. But I think that this will be the best thing that we can do for everyone in our family.